Reviews

Review Details

• Review fromSonia O

  Date: 01/13/2024

  1 star

  Sonia O

  Date: 01/13/2024

  On Sept. 2019, I was given the wrong amount of ******* by Oncology Infusion nurse. I was being relaunched by Hematologist for ********** ********* **************. The three vials were on the desk, where I sat. ******* is usually mixed in the back with Pharmacy. However, Oncology Nurse, extracted the drug which was only suppose to be 600 mg not 900 mg. This happened two weeks in a row. On the 3rd week, the nurse said that a mistake was made. The mistake was that I was given more *******. Then the nurse said that I could have stopped her, if I would have noticed the difference. Why would I notice the difference? ******* is usually already premixed by the pharmacist not in front of me. The Oncology nurse blamed it on the pharmacist. Really? You just charged my insurance another $40,000 in Sept. 2019? I reached out to the PNH expert doctor and told him what happened, he said that it was fine. Really? Let’s see, my back was inflamed as if I had sunburn; my eyelashes thinned out; I was gaslighted by Johns Hopkins but according to incompetent doctor, my platelets increased. Yet, the platelets went back down in a few weeks. It was unprofessional and manipulative move by **** **** infusion. BTW, I missed two appointments in June 2019, I believe doctor was recouping his money. ******* is thrown away, when not used. Also, I was ghosted by doctor and had to do blood transfusion in the Emergency Department before *******. Johns Hopkins never preauthorized drug in Sept. 2019. I had to put pressure and call insurance that opened an investigation against Johns Hopkins. My drug was not ordered, because Hematology doctor was waiting for my hemoglobin to drop so low that he could have his research. It was abuse all-around by Johns Hopkins. The Ultra Rare community is exploited and put at the mercy of these PNH doctors.

  Johns Hopkins Pharmaquip

  Date: 01/26/2024

  We appreciate your feedback and the opportunity to address your concerns. We take all reviews seriously and are committed to providing the highest standard of care and service.
  Regarding the matter you raised, we want to assure you that it was handled appropriately and in accordance with our established protocols. All relevant information was shared transparently with you, the patient, at the time of the event, and we can confirm that no ill effects occurred as a result.
  In response to your specific concerns, we regret to inform you that we are currently unable to conduct a more detailed investigation into this matter. This limitation is due to ongoing legal proceedings related to a lawsuit that was dismissed a year ago. Thank you for bringing your concerns to our attention, and we assure you of our continuous commitment to patient care and satisfaction.